During a time when children develop Alopecia, it disturbs the whole family. Usually, it is a stressful, extremely emotional and even frightening time. As a family, you can start wondering whether treatments would ever work and how it might develop.
Do not worry. AAAF is there for you.
Keep the child Calm
Most children, most likely the very young ones, will act as per their parents' reactions. If you act fearfully or distraught, they too will be. Receiving a diagnosis of AA can never be easy for you or your child. But with time, all will be well.
Just try not to concentrate excessively on the hair loss. Do not check the patches on the hair daily. Don't. Alopecia is annoying, categorization the changes will only bring stress to both you and your kid. Although, try not to forget the facts about alopecia. A lot of people with AA do not experience full hair loss but have their hair grow back.
Keep them doing stuff
Most often, children diagnosed with AA tend to withdraw from participating in activities they once treasured. Always inspire your child to stay involved, especially in things they enjoy doing. This will be of help in two ways. First, some changes occur on one's physical appearance during AA. These changes can hugely affect a child's self- esteem.
When a child succeeds in his or her interests, it helps boost their confidence by giving them a sense of achievement. Remember, your child may be bald, but that does not change anything. They are still the best musician, artist, writer, and many others. Secondly, when a child stays engaged, it helps the child to connect with a support network. Activities with a team build children social connections.
Social and emotional support
As family and friends, you ought to try your best to smooth the way for kids with AA. The three significant things to be done are explaining, discussing and practicing. Take a lot of care when talking anything about alopecia, as it will impact the way how your child will feel about alopecia. Do not make talks about alopecia private or sad, as the condition will seem isolating and shameful.
Instead, discuss it with honesty and openness, this way, your child will be less frightened and will take it usually. Another important idea is to make a child aware of what is going on. It is essential in a manner that the child now feels more in charge and less worried about what is going on. It becomes even more natural when other people ask them about the condition.
Yes, other people will ask. Are you worried about other people asking them about the condition? You will not do anything about it. Just practice how your child will respond if people asked. Let your child feel prepared. It is entirely your responsibility and that of your child how to reply to people regarding AA if your child thinks that it is not their business, it is okay if they want to explain to them, well and good.
Another good thing to do is letting your child associate with other alopecia. This normalizes AA. You should know how it feels being with people who are in the same boat with you, right? You can freely share experiences and feelings and build a network with them.
Let the Child have a say on medication
Young kids experience alopecia in the same way teenagers and adults do. They might lack correct words to explain exactly what they are feeling in their condition, but the emotions are same. I had mentioned the importance of children understanding their situation. But the truth is, they must realize their status because it is their condition.
It is worth noting that children have rights to know about their medical state just as adults. Even if it means explaining to them in a more straightforward language, it is also essential that your child has an opinion into the decision about the alopecia treatment. When doing all these, age relevance is a key factor.
Children should not be their caretakers or have the final say concerning their care. The parent's character in decision making should be vital, that should never be diminished. But it is crucial that a child have a say in what happens to their body. Sometimes, treatment may be painful and others with side effects.
In summary, raising kids with alopecia has never been easy. But as a parent, try and do your absolute best. You are never alone with the condition. Many individuals can assist you to ease the way. AAAF is currently working on a parent's pack, which will help families like yours have a positive journey. Kids with alopecia are damn amazing and grow into beautiful people with beautiful stories to tell.